Tuesday, September 14, 2010

Another new path

Lina and I arrived Sunday night after an easy flight. We were able to watch a movie because my hubby got me an awesome laptop. It really might the time go fast. Yesterday we met Dr. Lipzstein to talk about radiation therapy. I was taken off guard with the possible side-effects of the radiation, but after careful thought and a talk with Rob we decided it was worth the risk. She will have surface radiation on her neck in the hope that the cells that form the thick keliods will not develop-risk one: she could develop thyroid issues in 10-15 years, risk two: her jaw bone could have growth issues. The other kicker is that we have to go to the doctors office for treatment and it has best results if treatment begins within 24 hours, so we have to be discharged fast. We are scheduled to go back to the Fittzpatrick on Friday and there are no rooms available sooner due to the NATO thing going on. I don't know how we can leave so soon as it seems to me that Dr. Rose is going to do quite a bit of surgery. He will be regraphing the nose and inserting a trumpet, he is debulking her lips and reconstructing the upper, and removing all the keliods on her neck and chin. He said he thinks surgery will be about 4-5 hours, but not to hold him to it---I say 8 hours. Lina has grown-up so much. She decided to get the IV before going to sleep so that she didn't have the stinky mask. I was able to stay with her until she fell asleep. We sang together. When the doctor gave her a hit of Verset (sp?) she sang by herself, loud, Jesus loves me--it was priceless. Lina and I really enjoyed yesterday. There was a lot of time in between appointments so we joked around and found a tree-lined spot to play cards. She is fun. Hannah is being honored Friday morning at a breakfast for her academics-I am so pround of her! John played in his first flag-football game on Monday, I am excited to see how he develops under Coach Mikes direction. Mary I ate a couple of Bill's cookies last night and I was thankful for them! You rock!
Today's verse: John 15:11 "These things I have spoken to you, that My Joy may remain in you, and that your joy may be full."

5 comments:

Mary said...

hi momma!! I miss you, but I am glad that you liked the cookies. I hope that you are having a good time, and that you are able to get out of the hospital by tommorow!! Tell Lina that Jesus does love her, and so do I!!XOXOX

Anonymous said...

Love you honey! Not sure how you do it every day, but I'm just glad I got through day 2...

Thanks for being such a good mom & wife!
Rob

Tia Peggy said...

Lina is growing up, and her maturity is becoming more and more evident as she develops. And as proud of her as I am, she would not be where she is without you. Your devotion as a mom; your love for the Lord and commitment to do the Lord’s work, is evident not only in you, but in your children. There are no words to give justice to the amazing young lady Hannah has become. And I too, am so very proud of her. Mary is maturing way too fast – I remember when she was toddling around. Her confidence and joy is personified through her precious gifts of song and dance and baking and doing and giving. John is blessed to have your guidance and often tough love – he will surprise you … when one day you wake up and all your hard work has paid off. And Lina … I can only imagine what goes through her mind. With all she has been through, all she continues to endure and the love she has for humanity and her desire to please… God gave her the greatest gift when He put her in your care. I have confidence that the story Lina will share with the rest of the world one day, will be a testimony to your unfailing love and sacrifice for her. John 15:11 speaks to the gifts you have given your children. Where love is shared, joy overflows!

You and Lina are in my thoughts. I will pray for her quick recovery; and I will pray that the right accommodations present themselves so that Lina can receive the radiation she needs, and you can get the rest you need. God will be with Lina through the procedures and I have faith that the repercussions of the radiation will be minimal.

I love you both; I wish I could be there with you and for you. My heart remains with you – and my prayers are endless.

Give Lina hugs and kisses from Tia Peggy! And feel my love. I’m hugging you right now.

With all my love and affection,

Tia Peggy

Anonymous said...

Prayers always w/your family and you while attending to Lina in NY.
Altho I was needed to be with my parents and am now back, prayers were continually sent up for God's tender mercies in these surgical issues!
Safe journey home and bestest blessings!
Elaine & John :)

Anonymous said...

how is Lina doing?