Thursday, July 10, 2008

What an incredible dope I am!!

So we got into NY yesterday, no problem, went to the pediatrician, got the ok for surgery. We got Lina her cheeseburger, and I tucked LIna into bed. I couldn't sleep, all of which is very normal. I checked the clock fell asleep around 3:00. I had set the alarm for 6:00 am and had my cell set....but I awoke to the phone at 8:30 (surgery was scheduled for 8:00) it was Nancy from Dr. Rose's office wondering where the heck I was. Lina and I were in a cab in 7 minutes flat. Dr. Rose had arranged to get a surgical suite at 10:30 and when I arrived at the hospital he gave me a hug and said, "The first thing we need to do is settle you down, stuff happens, we were worried about you, because you are so on top of things." I am so thankful he is such a kind person, he really had every right to be angry with me. I called Lea, as she always puts things in perspective for me, and she said God just didn't want us here at 8:00----I wonder when I'll forgive myself for this one...Lina was extremely upset this time. I carried her into surgery and the sleepy machine wasn't ready, so she got even more worked up, and was dry heaving...I settled her down and she went to sleep. Dr. Rose estimates surgery will take about 3-4 hours, very short in comparison, I'll post when she is out of surgery. I read Matthew 24 last night---it will be a incredible day when Jesus comes again...I know Lina will be the first to join him as she most certainly is one of his angels. I am truly in awe of her! Keep praying my friends, and please post a Hello when you read, I really enjoy the notes and need them!

Sunday, July 6, 2008

Surgery planned for July 10

Lina and I leave for NY on the 9th. We have an appointment with the Pediatrician on at 5:00, then for the traditional cheeseburger and milkshake dinner. Our family has been approached by a national tv show that is premiering in September, The Doctors, to possibly do a story on us! Please pray that the Lord will use this opportunity to bring others unto Himself. I have not always understood why us, why me...however I have never doubted that this is God's will for our lives. It is my prayer that others would know Jesus because of the work he has done in our family. Thanks for continuing to pray. I have mentioned my friend Susan who is adopting... she finally got her LOI, permission to go to Kaz and meet her new family member, please keep her, Joe and Sean in your prayers. Also, a young lady from my church is having surgery on the 9th, Rachel, please remember her also. Pray is such a powerful gift--thank you for giving to me.

Saturday, June 14, 2008

Saturday June 14

Well, I really stink at updating this blog. We are home and Lina is doing great. They moved the pendulum from her nose to her eye-very strange to look at- Dr. Rose fixed the area above her new nose and worked on her back. The back opened up, so she may have to have a graft in July. We are going back on July 9, surgery on the 10th. Lina truly is amazing. I think it is a blessing that she doesn't know she is different. Thank you Palmer family for the wonderful care package, it truly lifted my spirits. Thank you Mom and Dad, you truly know me--the cookies were yummy! I also apreciate you putting your life on hold to take care of the children while Rob was gone. The kids love spending time with you. To all my faithful friends, I can not do this without your continued encouragement, calls, and love. Bill and Susan, my angels--the love and admiration I have for the two of you is immeasurable. Thank you for flying Hannah out. For those they may not know, The Physically Challenged Irish and American Youth Team was in NY while Hannah, Lina and I were there. This is the charity making everything possible for Lina. Medical assistance is not the charter of the organization. They bring kids from Ireland to NY that are physically challenged, cerebral palsy, deaf, etc and they spend 2 weeks in the US. Then they send kids from the US to Ireland for 2 weeks. For some of these kids it is the only opportunity to be away from their parents, they grow physically and mentally. I was blown away. I know that I WILL be a part of the crew when my children are older. Friends, please be in thought as to a fund-raiser that we can do this year, I really want to give back to this organization and will need HELP.
I am not looking forward to going back to NY so soon, but the next surgery should create BIG changes to Lina's face. I hold firm to 1 Corinthians 15:58-Therefore, my dear brothers, stand firm. Let nothing move you. Always give yourselves fully to the work of the Lord, because you know that your labor in the Lord is not in vain.

Wednesday, May 21, 2008

tuna and orange gatorade

Definitely not as invasive as the last surgery...She looks great, a little swelling, there is a bandage over the eye, so I can't tell what it looks like yet...I'm off to find her tuna and gatorade... the food here is beyond awful. Sorry for the short post

Tuesday, May 20, 2008

May 20, 2008

New York, New York...this really is an amazing city! Lina and I got here yesterday, checked into the Fitzpatrick (they put a twin bed in "our" room (210 from last time) and left a fruit basket, they are so nice to us) and then went to the Pediatrician. I was a little worried about the staph infection she had on her ear, however they just put a sterile bandage on the ear and surgery is a go! Dr. Rose will be taking the flap from her nose to recontruct her eye. I can't even imagine how all this works, thank goodness he is the surgeon! He also going to incise one of the scars on her back, and lipo the right side of her face. He said surgery should be about 5 hours, so we will see! Bill picked us up this morning and was amazed at how great Lina looks! My mind is all over the place today--can't seem to focus on anything!
Mary, make sure Daddy videotapes the play tonight, Lina and I can't wait to see it! Hannah, did you talk with Mr. Robinson? John, for those of you that don't know-he broke his collarbone on Friday-be careful. Rob-love you. I'll update soon....

Sunday, April 6, 2008

The world doesn't revolve around Lina

I know this blog is dedicated to keeping a log of Lina and her surgeries and her progress, but as I sit here, this raining Sunday, I feel it is important to update on the rest of the family. Rob started a new job on March 12th. It is our hope that he will not have to travel so much. It was a pay decrease, but we feel the time we spend with him is of more value. He is training and has a lot to learn, but he's excited with the opportunities ahead of him. Hannah, as a freshman, is maintaining a 4.5 gpa, currently running track (and placing), and finished basketball season as an honorable mention in all-conference, and made 3rd team for PCAC. She has her sights set for a division 1 college and we couldn't be more proud. Most amazing though is her continued committment to reading the Word everynight. She loves the Lord and it shines through all she does. Mary continues to be Lina's number one cheerleader. She always places Lina above herself and teaches me each day what it means to be a doer of I Corinithians 13. Fourth grade at Wellington is a VERY challenging year, however, she has maintained straight A's all year. When the Lord chose this family to adopt it is quite obvious that he started with Hannah and Mary. They are quite frequently overlooked when attention is being handed out and their dedication to serving Christ has been a monumental reason for the success with Lina and John. John was hand chosen by God himself to complete us! His contagious laugh and smile that could melt and iceburg lift me up when I need it most. Boys are definitely more challenging than girls, at least at this age, but he is worth every moment of frustration! He is succeeding at school with marks of V in every subject. He is loved at school and made his mark as an athlete. He can do any and all sports with ease. This last surgery and even since I got home have been challenging for me. I trust the Lord and know he will not leave me, nor will he give me more than I can handle, however, my flesh, weak nature is feeling beaten and tired. It is a good thing that feeling change and my strenghth can and will be renewed. I have never used this blog as a negative sounding block, because I have great joy, but to those that might read and wonder, some days are hard, as they are in all lives.....I am blessed to have faith and encourage any and all to rely on Christ for all things.

Wednesday, March 19, 2008

There's no place like home...

Sorry for taking so long to blog....I don't think I'll ever get caught up at home, so I might as well keep this updated. Lina and I got home on Thursday. She is doing awesome, thanks to Dr. Rose, Bill, and the foundation. The bottom part of her little nose is so cute and the upper portion will be cute when all is done. The graft on her eye is healing slowly. Her eye has opened up so much! She is no longer wearing the sling and her back is healing. Her leg is not hurting anymore either. What a testimony this child has! Yesterday, when it was time to take a shower, she came crying to me asking for me to shower with her. I think she gets a little spoiled in NY. I told her no, she had to share me with her sister and brother, I guess attachment is no longer an issue. I spent some time talking with a friend about positive blogging...How much should I put on this blog????? I believe Lina's story to be an ispirational one, but I also want to be truthful, that said... This surgery was so hard, both physically and emotionally. Lina was so swollen and in pain, and she got mad this time. There were days that I cried wondering what I was doing, and why ! To be in the hospital surrounded by white walls and then go to the hotel, surrounded by walls that seemed to close in on us. ....Thank the Lord for Bill and Susan! The last 3 days they came and got us, took us to lunch, laughed and talked, if not for them I would be in a white jacket! haha Lina and I will return to NY for a day in about 3 weeks to see Dr. Rose and discuss her next surgery. I believe the next surgery will be shortly thereafter. Dr. Rose continues to amaze me with the plans he has for Lina. Lina wrote in her journal yesterday, "My face is beautiful because Dr. Rose is so cool. He is so smart." How incredible is it that she continues to look at the positive with all she has been through. Today I spoke with Regina from Children With Hairloss, the organization giving Lina hair each year. What an wonderful woman. Her wish is to provide to each child in need, but of course that takes money. To all reading, please pray for funding. Also, Mike at Next Generation in Tampa , is the man responsible for maintaining Lina's wig,and June, who cut it to fit Lina's face, I am so thankful for them, for their love and support of Lina and our family. Isn't it amazing that there is so much good going on yet we so often don't hear about it.
Thank you to my friends for your prayers, love, and conversation. Thank you to my church family for loving us! The Lord is teaching me so many lessons, each day. I am so blessed. He continues to work on me, even though I mess up on a regular basis.